Parents reveal three sons have 'catastrophic' muscle wasting disease

Parents whose son, 14, and 10-year-old twins ALL suffer from life-limiting muscle wasting disease say their children give them the ‘hope and resilience’ to ‘keep fighting’ for a cure

  • Archie, 14, and his identical twin brothers, 10, George and Isaac all have DMD
  • Brothers were all diagnosed with the genetic muscle wasting disease in 2012
  • Mother Paula and father Padraig appeared on Good Morning Britain with Archie 
  • Parents say children inspire them to ‘keep moving and push forward’ for cure

The parents of three sons were all diagnosed with a ‘catastrophic’ muscle wasting disease say their children give them the ‘hope and resilience’ to keep going. 

Archie Naughton, 14, and his identical twin brothers, 10, George and Isaac were diagnosed with Duchenne muscular dystrophy (DMD) in 2012. 

The genetic disease, which causes muscle tissue to die, means the boy’s life expectancy will be shortened ‘considerably’ and there is currently no treatment or cure for the condition. 

Appearing on Good Morning Britain today, their parents Paula and Padraig, of County Roscommon, said they will never stop fighting to ‘ultimately find treatment and a cure for everyone with Duchenne’ and that their kids give them the ‘impetus to keep going’. 

Archie Naughton, 14, (middle) from Ireland’s County Roscommon, and his identical twin brothers, 10, George and Isaac were diagnosed with Duchenne muscular dystrophy (DMD) in 2012

Appearing on Good Morning Britain today, their parents Paula and Padraig (pictured with Archie) told that they will never stop fighting to ‘ultimately find treatment and a cure

‘It is a catastrophic muscle wasting disease’, Paula told, ‘It mainly affects boys and it is very debilitating, the children lose the ability to walk, to run, to move and it reduces life expectancy considerably. 

‘So it’s a very difficult thing to learn about your children and to witness, but Archie and so many of the other children are so inspiring. 

‘They gives us the impetus to keep going and keep moving and push forward,  to ultimately find treatment and a cure to everyone with Duchenne.’  

The parents are started the Join Our Boys Trust, which is dedicated to raising awareness of DMD and supporting the practical needs of Archie, George and Isaac, and Padraic says their children give them ‘the strength to keep fighting’. 

The genetic disease which causes muscle tissue to die means the boy’s life expectancy will be shortened ‘considerably’ and there is currently no treatment or cure for the condition

Speaking of his condition, Archie added: ‘[It] kind of effects me in some tasks, but I choose to just keep going and not let this horrible disease stop me’ 

What is Duchenne muscular dystrophy? 

Duchenne muscular dystrophy is a neuromuscular condition caused by a lack of protein called dystrophin.

Around 100 boys with the serious condition, which causes progressive muscle weakness, are born in the UK each year.

It is a genetic condition and can be inherited.

The condition starts early in childhood and maybe detected when noticing a child has difficulty standing up.

Children with DMD will struggle to walk, climb and run.

The condition causes muscles throughout the body to weaken and waste, including those of the heart and chest.

Source: Muscular Dystrophy Campaign 

‘We’re the hope for the boys’, he said, ‘We’re the fighters in a very desperate position like any other parents with children with the disease. 

‘With Duchenne we’re desperate to keep fighting and the boys give us the hope and resilience to keep going, because the boys inspire us every single day and are so brave and courageous . 

‘All they’re looking for is a treatment and cure, when you ask them – they’re so brave in the their struggles each day and they ask when there will be a cure and as parents we are never going to give up fighting, we’re desperate we want to try and bring help to our boys. ‘  

Speaking of his condition, Archie added: ‘[It] kind of effects me in some tasks, but I choose to just keep going and not let this horrible disease stop me.’ 

Twitter users quickly took to Twitter to praise the brave teenager, with one writing: ‘Archie is a wee star’

Twitter users quickly took to Twitter to praise the brave teenager, with one writing: ‘Archie is a wee star’. 

Another wrote: ‘Do you know sometimes in life you need a reality check, just watching @GMB and totally in awe of Archie Naughton what a kid. What an inspiration and we sometimes think we have it hard. Good on you Archie.’ 

A third said: ‘Archie is a great young man, wouldn’t it be great if there was a cure for all these awful diseases.’ 

Archie is soon to turn 15, and hosts Piers Morgan and Susannah Reid surprised the teen with a message from his favourite football player Timo Werner. 

Archie is soon to turn 15, and hosts Piers Morgan and Susannah Reid surprised the teen with a message from his favourite football player Timo Werner (pictured left) 

But that wasn’t the only surprise as the presenters revealed that Archie’s twin brothers are huge fans of Nigella Lawson, and had received another message from the TV chef (pictured left)

In a video filmed at Stamford Bridge, the star striker said: ‘Hi Archie, it’s Timo here. I’ve heard you’re a big fan of me and I want to thank you for the support, stay strong, all the best and take care’. 

But that wasn’t the only surprise as the presenters revealed that Archie’s twin brothers are huge fans of Nigella Lawson, and had received another message from the TV chef. 

Speaking in a video message filmed in her kitchen she said: ‘It’s Nigella here I want to say hello to you three boys Archie George and Isaac, i’ve heard so much about you I just want to say Merry Christmas and all my love’.  

Source: Read Full Article