I lost my eye to cancer as a baby – now I have a glow in the dark eyeball

TAKING pictures of your little one is a key part of them growing up.

It charts special moments, but for one family, it revealed a terrifying illness in their daughter.



Rachel Mayta seemed perfectly healthy until she was 18 months old and a doctor spotted something strange in her eye.

He asked her parents for pictures of her and saw a sure sign that something was amiss.

Her right eye appeared to be emitting a glow in the image – a key sign of cancer or eye disease.

In October 1991, Rachel, now 32, was diagnosed with retinoblastoma.

Read more on eye cancer

I’m sharing polaroid of my baby so other parents don’t face our horrific truth

Mums-to-be can now get life-saving test that could save years of heartache

This is a cancer that is found in the retina and most commonly affects young children.

Doctors explained there was no chance of saving the eye and it had to be removed urgently to prevent the illness spreading.

Four days later, the youngster had the eyeball removed and luckily, she says she doesn't remember much of herjourney.

Now Rachel is raising awareness of the condition and has even grown the confidence to experiment with different prosthetics.

Most read in Health

'DIABOLICAL'

Doctors called me hypochondriac – but during caesarean they found I had CANCER

BLOOD CANCER

I thought my sore throat was tonsillitis – but it turned out to be rare cancer

VIRAL LOAD

UK's monkeypox epicentre revealed – as 86% cases traced to one city

BIG NIGHT OUT

I thought I felt groggy from a bad hangover – I woke up fighting for my life

She was fitted with her first prosthetic when she was 20-months-old and recalls not being massively affected by having just one eye and always wore a prosthetic.

However children nicknamed her “Cyclopes” as a result.

But it wasn’t until her mid-20s that she suffered any self-confidence issues, after having a surgery designed to replace the implant holding her prosthetic in place.

Rachel, who lives in Portland, Oregon, US said after surgery and the healing process, her eye lost most of its ability to blink.

"A surgery where I had expected the outcome to result in more mobility of the eye and a more realistic looking prosthetic became the exact opposite.

“Prior to this surgery most people wouldn’t have even noticed my eye, but afterwards it was very apparent.

“I was very aware of the people looking at me, I had people say mean things and talk to me differently", she told NeedToKnow.

The hairstylist said she had previously been seeing a guy, who after a few dates told her that her eye freaked him out and that he wouldn't be able to see passed it.

She added: "I was so unhappy with how I looked that I really didn’t do much outside of the home for almost a year.

“And then one day it hit me: I am who I am. I made the active choice to stop saying mean things to myself and only allow myself to feed my brain positivity and tell myself good things.”

She has now gained a newfound confidence and has decided to explore different options – and has become creative.

She said: “I am so grateful that I found my occultist Christina King at the Center for Ocular Prosthetics in Portland – she is incredible.

How retinoblastoma develops

The eyes are one of the first things to develop in the womb.

In the very early stages the eyes have cells called retinoblasts that grow very fast, explains Cancer Research UK.

Later, they stop growing and develop into mature retinal cells that can detect light (the role of the retina).

But sometimes, they do not stop growing or mature.

Instead, they grow out of control and develop into a cancerous tumour called retinoblastoma.

If the tumour is not treated, the cells continue to grow and the cancer fills most of the eyeball.

Most retinoblastomas are found early and successfully treated before they spread outside the eyeball.

If they do spread, they can go to anywhere in the body including the brain, bones and lymph nodes Open a glossary item. They can be difficult to treat once they have spread

“I really wanted a way to show people that I’m happy with who I am and I am open to questions and didn’t want to hide the fact that I wore a prosthetic.

“I love gold and had wanted a gold prosthetic for a while, and when I brought it up to Christina, she was not only supportive but excited about the project.

“Since then, she has made six or more fun eyes for me including glow in the dark, holographic and gold-leaf eyes.”

Rachel shows off her funky prosthetics on TikTok with her 368,000 followers.

Her most popular clips have racked up more than 11 million views, and Rachel says she is committed to helping end the stigma of visible differences.

Read More on The Sun

BGT’s Amanda Holden makes blunder about disabled contestant Eva Abley

Hollyoaks’ Jorgie Porter sends fans wild as she goes topless in swimming pool

She added: “I love to make people laugh on TikTok and shed some light on what life is like having a prosthetic through humour.

“Being able to laugh about the things that make us different is such a vital tool. Be exactly who you are 100 per cent of the time and you’ll have nothing to hide.”


We pay for your stories!

Do you have a story for The Sun news desk?

Email us at [email protected] or call 0207 782 4104. You can WhatsApp us on 07423 720 250. We pay for videos too. Click here to upload yours

Click here to get The Sun newspaper delivered for FREE for the next six weeks.

    Source: Read Full Article